by roseandgold | Mar 25, 2024 | Advocacy, Bleeding Disorders, Chronic Conditions, Community, Encouragement, Hemophilia, Hemophilia Awareness, Hemophilia Caregivers, Mylyfe, Support
Living with a genetic bleeding disorder has many challenges, not just for the individuals diagnosed with the condition but also for their caregivers. Hemophilia caregivers are vital in managing the daily needs, emotional support, and medical care of those living with...
by roseandgold | Dec 21, 2023 | Bleeding Disorders, Chronic Conditions, Community, Hemophilia, Mylyfe
Hemophilia is a rare bleeding condition impacting individuals globally, and if you have a loved one with hemophilia, there are many steps you can take to be a supportive ally. In this blog post, we will explore the significance of being a hemophilia ally and explore...
by roseandgold | Sep 29, 2023 | Bleeding Disorders, Chronic Conditions, Community, Mylyfe
Living with a chronic illness can be an incredibly challenging experience. The physical and emotional toll it takes can often leave individuals feeling isolated, misunderstood, and overwhelmed. However, there is a powerful tool that can provide solace, support, and...
by Mylyfe | Jul 19, 2023 | Bleeding Disorders, Community, Encouragement, Hemophilia, Tips
Summer camp can be an exciting and fun-filled experience every child looks forward to and a great opportunity to have fun, make new friends, and learn new skills. For parents of children with bleeding disorders and hemophilia, it can also be a catalyst for...
by Laura Sousa Wagner | May 3, 2022 | Community, Mylyfe, Stories
Parenting a Child with a Chronic Condition: Trusting Your Instincts and Riding the CurveBy Laura Sousa Wagner (a guest blogger) Laura shares her story about finding out her newborn not only has a rare disorder, but also an inhibitor. How does a new parent decide on...
by Mylyfe | Jan 20, 2022 | Community
It’s been an interesting time, these last few years. Starting Mylyfe just as COVID hit really gave me some invaluable insight into what it means to lead especially during times of great challenge. I’ve met many leaders over the span of my life, most have had a...
